MoMo Twins Died Due To Doctor

by Marie

When I was 20 weeks pregnant I was diagnosed with MONO MONO twin girls. I was told they had a 50% survival rate and I needed to go to a specialist. That there was nothing I could do until the 26th week. The specialist finally made me appointment at 26 weeks. With me calling everyday trying to get an appointment. At week 25 I had an ultrasound that showed both babies had died. It was exactley 3 days before my appoinment with the specialist. Please if you are diagnosed with MOMO twins get to a specialist ASAP I don't want anyone to lose 2 precious babies like I did due to not seeing a specialist until they were available. I know things happen for a reason but I think I will always live with what would of happen if the specialist would of seen me sooner.

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May 12, 2016
Mono Mono Twin Boy's
by: Gina

I was Diagnose with mono mono twin's at 12week's.I didn't realize how serious it was till the doctor came in and explain that they have a 50% survival rate. They ordered routine genetic testing by blood,because they couldn't complete it by ultrasound, that when I found out they were boy's and also healthy. They gave me ultrasounds every two week's and a 2hour one at 18week's,that reveled they were developing well but hunter had a knot in his cord but it didn't restrict blood flow at the time. I came back at 21week's for another ultrasound and my boy's didn't have a heartbeat. Eric got tangled with hunter and they got there cords compressed, hunter died first about a week previous then eric day's before. I miss my angel's so much. I read on the internet that there survival rate increased to 80% with monitoring but I didn't realize that's after 24week's.

Sep 02, 2015
So heartbreaking
by: Marie

This is so weird writing this. I don't know if you will even get this notification or whatever. My name is Marie too, this exact thing happened to me too. I lost my momo girls and I totally live in guilt of what would have happened if I would have followed my gut that they were momo.
My first sono the tech told me she didn't see a membrane seperating them. Then the doctor didn't apparently think much of it. I asked a million times about the initial comment by the tech.. each time the doctor told me there was a faint line which indicated a membrane... what I would do to go back in time and demand a specialist.

Anyways I would love to talk, I kind of feel a connection sharing our name.. our experiences my email is if you get this I would love to chat. Or anyone else working through this grief.

Jun 02, 2011
by: Anonymous

Hi there.

I was misdiagnosed with my twin pregnancy. I was told my girls were mono/di and that there was a membrane.

Fast forward to the week of Thanksgiving 2010. Monday afternoon an u/s showed my healthy baby girls. Wednesday morning my u/s showed we had lost one. Thursday morning i delivered lucie who had passed and ellie who was rushed off to the NICU.

Come to find out I was pregnant with mono/mono the entire time. My doctors called me in at a later time and flat out said "we misdiagnosed you, I'm so sorry".

The emotions I feel are incredible. I'm happy Ellie is doing well, sad I lost my little Lucie, so so mad and angry my doctors and even a "SPECIALIST" didn't get it right. I cry every day over this.

Mar 31, 2011
my little angels went to
by: ella blake

hi i was 14 weeks when i found out i was having momo twins we were only told there could be a problem with the cord, and i would have to be monitored ever two weeks, they was never able to sex them went for a 4 d scan, told the sex straight away and also one had a bleed on there head, next day my hospital told me and sent me to a specialist unit in which my babies had already died, i knew in the morning that one had gone, when i was at my hospital they spoke about strong heart beats, and there where not going anywhere which gives you hope, then they would lazer the plantca off letting the poorly baby go, which would of been impossible i gave birth to them 5 days ago,the umbilca cord was like a tangled football, my babies came out holding each other, they weighed the same, my angels have gone and i feel empty inside, i have two boys , my angels where girls, please dont go through the pain i have make sure you get all the help you can god bless and look after my girls,ella

Mar 07, 2010
Hey im so sorry
by: Anonymous

I pregnant but not with twins. I writting a report on twins, because they amaze me!! And I'm going to add you in the report!! I hope everything is ok with you and your family!! Much love and kisses!! take care :)

Dec 13, 2009
I'm so sorry
by: Tara

Hi Marie,

I'm so sorry to hear that. I was pregnant with mono/mono twins last year and the doctors here in Pittsburgh gave them a 40% chance of survival.

The prognosis was extraordinarily bleak so my husband and I chose to terminate the pregnancy. It agonizes me everyday...

Mono/mono twin pregnancies are certainly traumatic and tumultuous - I would also recommend that those who find themselves in this situation see a perintologist immediately and seek emotional support when necessary.

Stay well,

Dec 10, 2009
so sorry
by: Anonymous

so very sorry (((((((((hugs)))))))))))

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