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Mono Mono Twin Girls Born At 32 Weeks With Tangled Umbilical Cords

by Vickie
(Boston, MA)

Entangled ambilical cords from our Mono/Mono Twins born alive & well at 32 wks

Entangled ambilical cords from our Mono/Mono Twins born alive & well at 32 wks

Our son was six months old and we discovered we were unexpectedly pregnant. We had wanted to try to get pregnant two months from then yet it was still quite the shock.

I went for my 9 week check up (by myself)and my doctor could not hear the heartbeat. She sent me for an ultrasound immediately. The technician was able to find not, one but TWO heartbeats!!

Its forever etched in my mind sitting on the ultrasound table being able to only speak the word "twins!?" I had wished I hadn't gone to my appointment alone!

I returned to my doctors office with the great news and she read the results. She said I was having mono / mono twins and that is considered a high risk pregnancy. The dangers involved were explained to me briefly (cord entanglement in their own cords or each others, knots in the cords obstructing flow to the babies).

Of course I went directly to the internet to read up about mono / mono twins. I read that they were more likely to have Twin to Twin Transfusion Syndrome (when one baby takes most the nutrients). We found out from our appointment with our new high risk pregnancy ob that this is NOT true.

We were told Mono / mono twins are actually LESS likely to have Twin to Twin Transfusion Syndrome "because they share so much".

I was monitored closely and we continually updated their progress and discussed their chances of surviving outside the womb compared to their risk of cord entanglement, etc. inside the womb.

We had weekly non stress tests and bi-weekly ultrasounds. The non stress tests became more frequent around my 29-30th week mark. I'd also go in unexpectedly because I couldn't feel the babies move. I would sometimes pass and sometimes "fail" the tests.

After a few days in and out with mixed test results I was admitted to the antinatal unit of Brigham & Women's Hospital in Boston at 29 or 30 weeks. They did non stress tests on me every hour or every other hour and ultrasounds daily.

We were able to get a steroid shot for the lungs in before the delivery which helps their lungs develop before birth.

Our beautiful mono mono (therefore identical) twins were delivered the day before 32 weeks of gestational age. Baby A was 17" long, 4lbs 1oz and Baby B 16" long at 4lbs 0oz.

We are TRULY blessed! Our girls were in the NICU from Feb 25th until March 29th & 31st..they came home two days apart.

To be honest, this was a very difficult time for us ..especially for me. Recovering from a C-section, I was unable to be home alone with my almost 1 year old son because I could not lift him. I was unable to drive for the first few weeks, therefore unable to visit the girls on my own. I needed someone to be with my son & me, someone to drive me to the hospital, some one to watch my son when I was at the hospital. Thankfully I did not realize how depressed I was at the time..too busy I suppose.

I had also torn or separated my abdominal muscles probably due to the size of my stomach and lifting another child while pregnant. This went undiagnosed or misdiagnosed for about two months. The pain was excrutiating and put me in the emergency room and eventually physical therapy.

But most importantly the girls were born in great health. Breathing on their own, holding their own body tempurature almost immediately, but on feeding tubes for feeding. That was difficult to see especially as the tape wore on the skin of their little faces. But we had faith in the nurses and doctors that they knew what was best and took good care of them. We asked questions about the machines they were hooked up to and the processes along the way.

When the girls were delivered (C-section like all mono/mono twins) the doctor showed us the umbilical cords and how entangled they were. She told us "this is why we're here today". I've attached a photo of the knot in the two umbilical cords to show the stress they can put on the flow of the blood to the babies. I'll also attach a picture or two of MY BEAUTIFUL HEALTHY ALMOST 4 YEAR OLD MONO/MONO TWIN GIRLS.

There were a lot of prayers said for these girls especially to St. Gerard the Saint of expectant mothers.

Comments for
Mono Mono Twin Girls Born At 32 Weeks With Tangled Umbilical Cords

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Aug 26, 2010
mo mo twins at 16wks
by: Anonymous

i went back to the dr and they took another look at the babies and still couldnt find a membrain. they also told us that they are girls so im pretty sure that they are momo if they can see all that as of now they both weigh 3oz so thats good that they are the same size baby a heart rate was 147 and baby b was 145 so i take that as good i dont know what levles they should be on i just want them to make it here heathy again coutinue to pray for us and i will do the same for you thanks

Aug 12, 2010
NOT TRUE!
by: Anonymous

hi there... well first of all, I would recommend that you check that the twins are actually mono mono, as sometimes u/s technicians miss the seperating membrane... My wife gave birth to our mono mono boys 2months ago at 33w1d, we've been through all the horrible feelings you are going through now, and we've read all the horrible things that you did read too, we've done a lot of search online too (thats how we found this website!)... one peice of advice... DO NOT BELIEVE ALL WHAT YOU READ!!!!!!!! I've read things like the chance of fetal death is around 40% and some others wrote 50%, 60% and even 70%!!!! Thats not true... I've contacted lots and lots of specialised doctors all over the world, in the States and in Europe... Its not true at this time and age!! All doctors recommended early elective C-section at 32wks, so I advice you to just aim for that (along with the approval of your doctor ofcourse). Bottom line, keep the faith and cheer up :)

Aug 11, 2010
mono mono twins at 14 weeks
by: Anonymous

to hear all the stories of how your babies made it makes me feel alot stronger. i was told yesterday that i was having mono mono twins and that i would have to see the high risk dr. bi-weekly until the put me in inpataint at 26 weeks from there they will watch them to make sure they dont get tangled and they are growing properly keep me and my babies in your prays and ill do thesave for you and yours

Jul 26, 2010
32 week girls
by: Ange

I had a five month old baby when I found out I was pregnant with my girls. They were 4.2 and 4.6 and perfect. GOOD LUCK!

May 16, 2010
28wks
by: Anonymous

You went to hospital at 24wks?? is that the normal procedure or were the cords entageled since then? I am 28week pregnant with twin girls and so far the doc says there is no entangelement, do you think I should go in to the hospital? Any advice please!!!!

May 15, 2010
Mono Mono girls
by: 32wks today

Hello everyone, and I want to start off by saying good luck to all pregnant women out there :O)
I just turned 32 wks today, we are so excited to have made it this far. I have been in the hospital since I was 24 and 1/2 wks gestation. The time in the hospital has been hard due to being away from my husband and 2 yr old little girl. I thank God that I haven't had any complications during this pregnancy. especially because you hear stories about complications in mono mono pregnancies. We are set to deliver the girls on Thursday! Think good thought and have faith, everything will be fine.I hope the best to all moms and moms to be.

Apr 27, 2010
Mono Twins
by: jskd

i wanna wish everyone the best of luck that are having mono-mono twins, you are in my prayers.. my husband and i lost mono-mono girls in 2007 (21 weeks gest)...

Apr 11, 2010
Advice please!
by: Anonymous

Hi all...
I'm so glad to hear such sucess stories! Thanks for the hope... My wife is 22wks with mono-mono boys! I cant bear the thought of losing them! We see the OBGY every week at the moment... Do you think we should discuss the option of inpatient? Did everyone go though that? any advice will help.

Feb 25, 2010
mono mono boys
by: 29 weeks 2 days

I've been here for inpatient monitoring at Duke since the day we turned 24 weeks. Was such a relief when I got here and have been greatful that we were given the option to come in that early. Ive actually had a piece of mind and can finally enjoy this pregnancy. Cant wait til the boys get here! March 16th is D-day, lord willing.

Jan 31, 2010
We made it to 34 weeks
by: Anonymous

if you were told your twins were mono mono there is hope. The best advice i received is to leave it in God's hands. And I got the best Christmas present, December 22 2009 5lbs 6oz and 5lbs 9oz with umbilical cords tangled. Looking at cords like these you cant argue that these children were meant to be here and are miracles. Our girls' cords have been tangled since 14 weeks and I was told i should have an abortion, but look at the outcome, my twins spent 2 and a half weeks in the NICU and now home where they belong.

Jan 29, 2010
wow ... yes that's the word
by: Anonymous

found out today at our 7th week ultrasound that we're having twins. they're concerned they may be mono/mono but we have another ultrasound in 2-3 weeks to see if they can find a membrain by then. But for now they both have strong heartbeats! wow...we're having twins!

Jan 19, 2010
30 week 4 days
by: jennifer

Hi everyone I just delivered my beautiful mono-mono twin girls at 30 weeks and 4 days. I was in the hospital on full monitoring at 25 weeks. They weighted 3.05 and 3.04 and were in the hospital for 8 weeks! Just wanted to share my story!

Jan 15, 2010
There's hope.
by: Beth

I am ten weeks pregnant with twins and just found out they are mono-mono. They are going to keep doing ultrasounds and try to find the membrane. They said they should have seen it by now. This was an unexpected pregnancy. I have 5 boys age 10, 7, and 2-year-old triplets. We are hoping these twins are girls! I'm nervous because I know about the risks, but I love hearing stories of success right now because I need to know that this is possible. I'm also worried about how long I will be in the hospital because we have no family here and my husband works. We do not put our kids in daycare because we can't afford it. We really can't afford to lose my income and I know my husband can handle the kids but it will be difficult. I just keep telling myself that I need to do everything to give these babies the best chance.

Jan 06, 2010
5 month old girls
by: Anonymous

My cords looked VERY similar to your , my girls were in the hospital for 1 month exactly and I was there for 8 weeks before having them! There is hope for mono mono twins and we are proof!

Dec 15, 2009
mono mono Girls! woot woot
by: 1st set of twins in my iowa fam!

I REMEBER THE FEeling i had when i saw the 2 little cacoon looking things on the ultrasouns screen at 8 weeks. then the mono mono came about and now i am 28 weeks today praying we make it to 34 weeks b4 delivery! i have 2 boys at home with my sister and brother in law.

Oct 02, 2009
Amazing...
by: Anonymous

How much are stories are alike. I had mono mono twin girls at 32 weeks with tangled umbilical cords. I thought for a minute that your picture was the one taken of my girls cords.

Anyway, thanks for sharing your story, it took me back to those days four years ago. The scare and worry I went through, but the joy and excitement once they were born healthy.

Jul 04, 2009
xmas mono mono's
by: Anonymous

i am carrying surrogate mono mono twins we found out at are 7 week scan and every scan we have had up till now has said the same thing, we are now 15 weeks pregnant. babys are growing well.we are being scaned every 2 weeks, so being looked after very well.

Jun 27, 2009
thanks
by: josie g

thanks for sharing your story and the pic. i am 9 weeks. initially i had 3 heartbeats. just last week the doctor said i have 2 heartbeats and they may be mono mono twins as there was no visible membrane at my last ultrasound. i saw a specialist who will wait and perform another ultrasound in two weeks. i am scared but very hopeful. we have been praying to the divine child and st rita de caccia - for all children. your story gave me lots of hope because i felt like a time bomb when i walked into my ob/gyn office last week with the triplet news and now this.

Apr 30, 2009
omg
by: Anonymous

thats amazing i found out that i am having mono mono tiwins i am 17 weeks and scared out of my mind i only pray mine will be as lucky as yours

Feb 05, 2009
WOW
by: Anonymous

What a story!!!! I am 24 wks pregnant with Mono/ Di boys. I am so happy to be having identical twins but worry because of the TTTS ( Twin- to- Twin syndrome) So far everything looks good and they are growing good so I thank God for that. God bless you and your family :)

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